Showing posts with label Psoriasis-Psoriatic Arthritis. Show all posts
Showing posts with label Psoriasis-Psoriatic Arthritis. Show all posts

Tuesday, March 9, 2010

Back to Writing

Today I am returning to writing. I have been ill, and unfortunately, this has caused my psoriatic-arthritis to flair and typing has been painful.

However, I am feeling better and, God willing, I will be able to keep writing without further interruption.

By the way- If you have Psoriasis- or a family history of Psoriasis, and have joint pain PLEASE see a rheumatologist right away. Psoriasis, with joint pain could be Psoriatic Arthritis. This condition should always be taken seriously as it can cause permanent joint damage as well as ongoing pain. The Psoriasis Foundation is a great resource on Psoriasis and Psoriatic Arthritis (PsA).
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Tuesday, January 26, 2010

Back to Blogging

It has been almost a year since my last post. Why?

Well, for just about the last two years I have been on a "contract for hire." Unfortunately, I became aware that the company (that I will not name) that I was contracting for appeared to have views on the Second Amendment that were quite different than mine, and at the time the contract started, one of the guys I was working with said, "I 'googled' your name and found your blog..." Although this person happened to agree with me politically, I began to worry about how the things I was saying may impact my contract.

Long story short, I am being laid-off as of Friday (29 January 2010), so I guess "holding my tongue" (or my keyboard in this case) really did not matter.

So, I am back.

I am still fighting with psoriatic-arthritis. I am now on Remicade and Methotrexate, so I am sure there will be days where writing may not be possible, but I shall do my best.

I look forward to writing and hope to see my readers return.

As always, comments are welcome- as long as they are NOT anonymous.
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Tuesday, January 20, 2009

Psoriatic Arthritis Update

Lately, I have received several emails and comments regarding how my Psoriatic Arthritis is doing. I wish I could say that things are great and there are no issues, but that is not entirely true.

I am doing better and fortunately I am off the Methotrexate (MTX). The MTX was not fun at all for me. I could usually count on 24 hours of being nauseous and queasy after taking it, but it would eventually pass.

These days I am taking Relefin and Humira, as well as a narcotic pain med. Originally, I had been taking Embril, which was a twice a week injection, but taking Humira, which is every 10 days for me, is much more convenient with traveling for work.

As far as how it is working, I am not sure. I have good days and bad days. New Years week had several bad days, and for some reason, the last 48 hours has been bad as well. The Humira is supposed to work on my skin psoriasis, but for some reason it has not. I am not sure if that means it is not working well on the arthritis portion of the psoriasis.

At any rate, I am thankful for the good days, and I make sure that when I am having one I take full advantage of it.
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Friday, March 14, 2008

Psoriatic Arthritis- Starting Methotrexate

Earlier this week I wrote about being diagnosed with Psoriatic Arthritis.

I saw the doctor again today. After a lot of discussion we came up with a treatment plan that will hopefully keep me from loosing the use of my hands and keep me out of a wheelchair-- Enbrel and Methotrexate. Enbrel is an injection that I will take twice a week… it suppresses the immune system. Methotrexate is oral. It is a chemotherapy drug for certain leukemia's, lung cancer and some other cancers, but it also works for Rheumatoid arthritis (RA) and Psoriatic arthritis (PsA). I take six pills over the course of 24 hours and then no more for a week. I have to wait for the insurance to approve the Enbrel, plus there is a bunch of blood tests, a chest X-ray, TB test and other stuff they have to do before I can start taking it.

So, I started my first course of Methotrexate today. All I can say is I wonder if the cure is worse than the disease. The literature was right about the nausea, achiness, being worn out, feverish (low grade), dizziness. Fortunately, from what I have read, I only need to put up with these side affects for 24-36 hours, then I will be back to normal.

Unfortunately, one of the other side affects is slow hair loss. Hopefully that one won't affect me.

If there are any of my readers out there who have PsA or have taken methotrexate, please feel free to email me if you are comfortable. If you have found this post because you have PsA or think you might have Psoriatic Arthritis, again, please feel to email or comment below and I will gladly share any information I know or experiences I have had.
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Wednesday, March 12, 2008

Don't Avoid the Doctor

I usually do not use this blog to post personal information, but I feel the need to share with everyone what is going on and encourage readers not to put off doctor's visits or avoid the doctor.

This week was given a "life changing" diagnosis from my doctor.

Several years ago, I discovered that I had psoriasis. Psoriasis is an auto-immune skin disorder that causes patches of redness and causes areas to build into a silvery scale and flake. Mine is fairly mild and certainly not as bad as many other cases. Generally, I use a topical ointment that keeps it under control and, up until a few months ago, I never really gave it much of a second thought.

A few months ago, I started noticing joint discomfort. This would come and go. The discomfort was in my fingers, my shoulders, and other joints, but I always had an excuse for it. I would think, "oh, I just typed to much," or "I need to clean out my laptop bag," or things along that line. At first, it would last a short while and go away. I avoided the symptoms. I ignored the symptoms. I hoped the problem would just go way. Then, I noticed that it was virtually constant. I also noticed that this was no longer discomfort, it was pain.

Finally, after a lot of encouragement from my wife (and pleading and arguing), I gave in and went to the doctor.

We discussed the pain I was having. He poked and prodded. He went over my history with me. Then he said, "it looks like you have psoriatic arthritis… I'm going to refer you…" This started me down a path of researching what this condition was and what I needed to do.

Psoriatic Arthritis (PA) is a condition that occurs in 10 to 30% of people who have psoriasis. It is somewhat similar to Rheumatoid Arthritis. PA can cause a variety of symptoms. Joint pain is common These symptoms can include deterioration of the joints, deterioration and fusing of bones in the spine, swelling of fingers to a "sausage" appearance, swelling and inflammation of the whites of the eyes (conjunctiva), deterioration of the bones in the fingers, inflammation of the lungs (pleurisy), inflammation of the heart and inflammation of the kidneys. Sometimes people with PA eventually need knee or hip replacements because of the damage to the joints. PA symptoms can be treated, but it cannot be cured or reversed. Treatment will slow, but not stop, PA.

After reading about all of this, I was, needless to say, not pleased. I am still young (I will turn 40 this year) and I enjoy being active. I enjoy hunting, backpacking, camping, and all sorts of outdoor activities. Additionally, I work in Information Technology. Typing is a big part of my profession and livelihood. Having a condition that will cause deterioration of my fingers is not something that will help career growth. To say I was upset about the diagnosis would be a bit of an understatement.

I am not giving in to this diagnosis. I am learning everything I can about PA and things I can do to make my life better. I am seeing a couple of specialists and making some lifestyle changes to be a healthier person.

I will continue to write. There are days when typing is not easy to do or comfortable to do. However, this is something that I love doing. So, there may be days where I do not write much, but it is not because I am not wanting to write. Rest assured, on those days, I will write what I can, and I will continue to research, read and look for material that will hopefully encourage thought, discussion and debate.

In the mean time….

Readers, especially men, don't put off that physical or trip to the Doctor. I am thankful that for me, the delay did not cause irreparable damage. But, there are other conditions and other symptoms that men tend to ignore or avoid. Putting off a doctor's visit can make things worse and can even be deadly. When you hear your wife or significant other say, "you really need to see the doctor about that" take the suggestion to heart. Avoiding the doctor will probably not make symptoms go away…and putting up with a bit of discomfort at the doctor's office may just save your life.
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